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Fabry Disease Registry & Pregnancy Sub-registry

Reward Compensation may be available — see study details

The Fabry Registry is an ongoing, international multi-center, strictly observational program that tracks the routine clinical outcomes for patients with Fabry disease, irrespective of treatment status. No experimental intervention is involved; patients in the Registry undergo clinical assessments and receive care as determined by the patient's treating physician. The primary objectives of the Registry are: * To enhance the understanding of the variability, progression, and natural history of Fabry disease, including heterozygous females with the disease; * To assist the Fabry medical community with the development of recommendations for monitoring patients and reports on patient outcomes to…

Reward Compensation may be available — see study details
Category Paid Research Studies
Location Alabama
Eligibility Currently recruiting U.S. participants. Eligibility varies by study — review the criteria and contact the study team. Compensation is mentioned for this study; the amount is set by the researchers.
Source Official Source ↗
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